NADR is BHCOE’s data registry helping clinics, health systems and ABA practices measure and improve the quality of autism care they provide. More than just data collection, NADR is a comprehensive network of ABA care providers committed to ensuring evidence-based care, improving patient outcomes, and lowering healthcare costs.
Through the capture and reporting of trusted and reliable data, the NADR helps participants measure, benchmark, and improve autism care.
Participation in the NADR:
- Informs treatment choices and drive quality improvement at the provider and institutional level
- Assists in the evaluation of practice patterns, technologies, and protocols
- Informs comparative effectiveness research
- Assists in broader dissemination of best practices
- Improves patient care worldwide
Currently, the NADR suite of autism data registry covers the following measures:
- Utilization of Authorized Hours
- Dosage of Clinical Oversight
- Social Determinants of Health (Demographic, Clinical, Prior Utilization, Social)
- Norm-Referenced Outcome Assessments of Skills
- Severity of Autism Outcome Assessments
- Patient-Reported Outcomes
- Tracking Risks and Progress of Severe Problem Behavior Assessment
- Quality of Life Measures
- Timely Initiation of Care
- And more
Benefits of Participating
Participating in a data registry can provide several benefits for healthcare organizations, including:
Improved Patient Outcomes
Data registries enable healthcare organizations to track patient outcomes and monitor the effectiveness of different treatments and interventions. By identifying which approaches are most effective, healthcare organizations can improve patient outcomes and provide higher-quality care.
Data registries provide healthcare organizations with the ability to identify areas where they can improve the quality of care they provide. By analyzing data on patient outcomes, healthcare organizations can identify areas where they need to focus their quality improvement efforts, such as reducing medication errors or improving patient safety.
By improving patient outcomes and reducing the need for unnecessary treatments or hospitalizations, data registries can help healthcare organizations save money. By identifying the most effective treatments and interventions, healthcare organizations can reduce the cost of care while improving patient outcomes.
Data registries enable healthcare organizations to compare their performance to that of other organizations in the same field. By benchmarking against their peers, healthcare organizations can identify areas where they need to improve and develop strategies for achieving better results.
Data registries can be a valuable resource for researchers, providing them with a rich source of data for studies on specific diseases or treatments. By contributing data to a registry, healthcare organizations can help advance medical knowledge and improve patient outcomes for future generations.
Enhanced Quality of Care
By participating in the NADR, ABA organizations can track and monitor their patients’ progress over time, identify best practices, and improve the quality of care they deliver.
By contributing to the NADR, ABA organizations can help to inform public policy and advocate for the needs of individuals with autism and their families.
Anya Perea, MSW
Chief Executive Officer
Chief Technology Officer
VP of Business Development
Melissa Sallustio, BCBA
Quality Measurement Manager
The NADR Data Quality Programs include a series of checks and balances to validate and ensure the quality of the collected data. These activities occur at different stages of the data collection process beginning with the registry database development. These activities are embedded into registry development and data collection.
All NADR web-based data collection tools are created with data entry checks such as range checks, parent-child checks or date checks to ensure data consistency. With the option to upload from existing EMR systems, the NADR also offers its participants a list of certified vendors that go through a rigorous process to assess compatibility, verify correct data transfer and ensure all NADR export requirements are met.
All data submissions are evaluated for errors (data assessment) and completeness (data completeness assessment). A summary report is sent to the participants after each data submission and participants may correct and resubmit their data (as needed)
Training & Education
The NADR is dedicated to supporting healthcare professionals working with the NAD Registry through regular training and education.
The NADR’s training and education program is intended to:
- Help improve the quality and accuracy of data collection
- Enhance measurement and outcomes, and ultimately optimize patient care
- Foster the exchange of best practices and networking among participants
Educational opportunities help professionals working with registries to build their knowledge and skills to effectively:
- Document, measure, collect and submit data
- Assess and use outcomes reports
- Implement quality improvement programs related to cardiovascular care